Join our Patients Working Group!

Are you living with a rare eye disease? Or are you a caretaker of someone who is?

Join the Patients Working Group of the international research project Restore Vision!

👉 English leaflet

👉 Spanish Leaflet

👉 Italian Leaflet

👉 Swedish Leaflet

👉 German Leaflet

👉 French Leaflet

We’re looking for patient representatives to help represent the following rare eye conditions:

– Aniridia-Associated Keratopathy​

– Ectrodactyly-ectodermal dysplasia-clefting syndrome​

– Ocular Cicatricial Pemphigoid ​

– Neurotrophic Keratopathy​

– Corneal Neovascularisation​

– Limbal Stem Cell Deficiency​

– Ocular Graft versus Host Disease​

As a Patient Working Group member, you will:

– Be part of an international project researching treatments for rare eye conditions

– Join one online meeting per year with fellow patients and leading researchers in ophthalmology

– Help ensure the patient perspective guides the project’s direction

Who can apply?

– Diagnosed with or caring for someone with one of the 7 listed conditions

– Comfortable discussing health in English

– Able to join online meetings (Zoom, etc.)

– Age 18 or older

Deadline to apply: September 2025

Note: All meetings and communications will be in English, please consider this before applying.

Questions? restorevision@catalyze-group.com