Patient Stories
Behind the rare eye diseases researched in the Restore Vision project are the real-life stories of people dealing with visual impairment. Read about experiences from patients and caregivers living with rare eye diseases.
28 February 2026
Surgeries, complications and emergency hospital visits – life with aniridia
“It often feels as if I have lived at the eye hospital more than at home, due to surgeries, complications, and emergency visits.” This is the story from Marie Olsson, 44 years old from a small town called Katrineholm in Sweden, who was born with an eye condition called aniridia.
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09 October 2025
A journey of resilience and adaptability – life with aniridia
Today it’s World Sight Day – a global awareness day dedicated to the importance of eye health, vision care, and the prevention of blindness and visual impairment. Behind this message are real-life stories of people dealing with visual impairment. Today, we share the story of Irma, 38 years old, originally from Lithuania, and mother of two children – a daughter of 12 and son of 8 years old. Her son was born with a rare genetic eye condition, called aniridia.
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