President of Aniridia Europe
Barbara Poli is a librarian born in 1965 in Venice, Italy. She currently works at the Library of the Fondazione Querini Stampalia and teaches bibliographic cataloguing at the University Ca’ Foscari in Venice. Her son is affected by aniridia and she has been involved as a patient representative for this rare eye disease since 2003. Barbara was one of the founders of the patient association “Aniridia Italy” and the federation “Aniridia Europe” which she currently presides.